Oswego chapter hosting benefit tonight

Friends of Doernbecher recently donated $175,000 to the Friends Grant program, which supports Doernbecher Children’s Hospital (DCH) faculty and staff with funding to pursue research or develop projects and programs at the hospital. Oswego Friends of Doernbecher is one of five chapters of Friends of Doernbecher that assisted in raising the grant funds.

The recipients and their projects include:

n Kristina Haley, M.D., was awarded $39,796 for evaluation and characterization of platelet function in adolescent women with heavy menstrual bleeding (HMB). In girls and women, heavy menstrual bleeding is frequently the first and only symptom of an underlying inherited bleeding disorder. Haley hypothesizes that a qualitative platelet function defect is responsible for a proportion of young women with HMB with normal results on first-time bleeding disorder evaluations. Further, she hypothesizes that currently available platelet function testing is not adequate for the diagnosis of mild platelet disorders. In order to test these hypotheses, she will connect clinical work in the Center for Women’s Health’s Spots, Dots and Clots clinic to the collaborative basic science work in the Department of Biomedical Engineering through a prospective cohort study of young women presenting with HMB.

n Chelsea Jenkins, a Ph.D. student, was awarded $31,388 for her proposal to develop novel treatments for children with Juvenile Myelomonocytic Leukemia (JMML). JMML is a rare, devastating blood cancer that affects young children. This proposal would provide new insights into the treatment for children with this deadly cancer. Doernbecher cares for the vast majority of children in Oregon with leukemia, which combined with the excellent research environment of the Knight Cancer Institute makes this an ideal place to develop and implement novel therapeutic strategies to improve outcomes for children with JMML.

n Michael Chiang, M.D., was awarded $39,087 for his proposed study of retinal imaging and whole-exome sequencing for Quantitative Retinopathy of Prematurity (ROP) Analysis. ROP is a leading cause of childhood blindness throughout the world. The goal of this project is to improve the clinical care and scientific understanding of ROP by identifying imaging and genetic features of the disease, and by analyzing their relationships.

n Anna Wilson, Ph.D., was awarded $39,649 to support her proposal for creating the Comfort Ability Workshop: Improving Pain Treatment for Children and their Families. Pediatric chronic pain is a significant health problem that places youth at risk for pain and disability into adulthood. Many children undergoing treatment for medical conditions (e.g., cancer, arthritis, cystic fibrosis, inflammatory bowel disease) experience recurrent or ongoing pain that is moderate to severe. This project is designed to fill the gap in service by implementing a one-day treatment program that teaches kids with chronic pain and their parents behaviorally-based skills and psychological strategies that are empirically supported in the management of chronic pain.

n Andrea Frank, Ph. D., was awarded $25,130 to be used for an Adolescent Neurology Transition Clinic (ANTC). In the Division of Child Neurology at Doernbecher, care is given to children with a variety of conditions, including epilepsy, migraines and neuromuscular disorders. A large number of patients have complex health care needs that do not resolve during childhood, and they must transition to the care of an adult neurologist. To prepare patients and families for this transition, multifaceted needs of this vulnerable population must be addressed, including medical, social, financial and legal needs. The ANTC would focus on providing a smooth and individualized transition to adult care. Funding from this grant will support clinical personnel and provide patient-specific materials.

Oswego Friends of Doernbecher was formed in September 1991 to honor a Lake Oswego child who was receiving treatment for leukemia. The chapter held fundraising events to raise funds for Doernbecher, which was opened in 1998, and other projects. As part of Friends of Doernbecher, the chapter is a “friend-raising” and fundraising group whose goal is to education and fundraise for the hospital.

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