Cook Park site for walk/run for two rare disorders
Hundreds of individuals and families are getting ready to join forces and help raise funds to support those living with Guillain-Barre Syndrome and Chronic Inflammatory Deyelinating Polyneuropathy on Sunday, Sept. 9, at the second annual Walk and Roll for GBS/CIDP at Cook Park.
The event will be co-chaired by Dani Sticka, a GBS patient and Sherwood resident, and GBS patient Matt LaRocco. LaRocco is embracing his life after GBS running, working and spending time with his family making the most out of life after spending 12-weeks in rehab regaining muscle function and learning to walk again following his diagnosis and subsequent paralysis from the neck down.
GBS is a rare auto-immune disorder characterized by the rapid and sudden onset of numbness, weakness, and often paralysis of the legs, arms, breathing muscles and face. It came to public attention briefly when it struck a number of people who received the 1976 swine flu vaccine and more recently has been linked to the Zika virus.
CIDP is a rare disorder of the peripheral nerves characterized by gradually increasing sensory loss and weakness associated with loss of reflexes. While the onset is less rapid than GBS, if left untreated it may progress to wheelchair dependence.
"Both conditions and its variants are extremely rare. GBS affects two people each year in every 100,000," said Lisa Butler, the GBScf0 CIDP Foundations executive director. "The prevalence of CIDP is estimated to be as many as nine in 100,000 individuals."
To register, visit gbs-cidp.org or call the foundation at 610-667-0131.